Show HN: OpenDataCapture an electronic data capture platform for data collection

by gdevenyion 7/22/24, 5:43 PMwith 14 comments
by breckon 7/23/24, 1:12 AM

Hi! We are interested in similar problems.

I worked on a new idea for EMR at UH Cancer Center called Pau (https://github.com/breck7/pau). It's now encompassed as a tiny part of a larger effort called Scroll (https://scroll.pub/). You might be interested in learning about ScrollSets (https://breckyunits.com/scrollsets.html)

Happy to chat if you want some feedback (email is breck7@gmail.com)

P.S. I love your focus on the concept of "instruments". Great word choice. Bullseye concept--well done!

by mxschllon 7/22/24, 6:55 PM

I like the gateway concept as an alternative to opening the firewall. Are there any plans to add FHIR compatibility, for integrating with other FHIR systems?

by dariosalvi78on 7/23/24, 11:21 AM

very nice work! at Malmo University we maintain an open source mobile platform for data capture in clinical research: https://mobistudy.org/

Our focus is more on sensors data rather than questionnaires, although we include those too.

Get in touch if you want to collaborate: dario.salvi at mau.se !

by taro549on 7/22/24, 6:50 PM

The instrument playground is really cool, though I’m not sure who the audience for that is

by ronybaon 7/22/24, 7:21 PM

its slow to load, also considering this is hospital data is this HIPPA and GDPR compliant?

by flyinchickenon 7/22/24, 5:58 PM

The Open Data Capture platform has a nice and modern interface. Its longitudinal data model is a useful feature for continuous clinical and research data collection, offering more flexibility compared to other EDC platforms tied to rigid study time points. I also found the instrument playground easy to use.